Parens E, Appelbaum PS. An introduction to thinking about trustworthy research into the genetics of intelligence. Hastings Center Report 2015;45 Suppl 1:S2-8.
The advent of new technologies has rekindled some hopes that it will be possible to identify genetic variants that will help to explain why ... Read more »
Cohn EG, Husamudeen M, Larson EL, Williams JK. Increasing participation in genomic research and biobanking through community-based capacity building. Journal of Genetic Counseling 2015;24(3):491-502. NIHMS771271.
Achieving equitable minority representation in genomic biobanking is one of the most difficult challenges faced by researchers today. Capacity building—a framework for research that ... Read more »
Johnston J, Banerjee MP, Geller G. Trustworthy research institutions: the challenging case of studying the genetics of intelligence, Hastings Center Report 2015;45(5):S59-S65.
It is simple enough to claim that academic research institutions ought to be trustworthy. Building the culture and taking the steps necessary to earn ... Read more »
Parens E. Drifting away from informed consent in the era of personalized medicine. Hastings Center Report 2015;45(4):16-20.
The price of sequencing all the DNA in a person's genome is falling so fast that, according to one biotech leader, soon it won't ... Read more »
Klitzman R. The need for vigilance in the marketing genomic tests in psychiatry. Journal of Nervous and Mental Disease. 2015;203(10):809-810.
Recently, several for-profit companies have been developing and marketing genetic tests to psychiatrists, yet the clinical utility of these is not always clear, posing ... Read more »
Klitzman R, Toynbee M, Sauer M. Controversies concerning mitochondrial replacement therapy. Fertility and Sterility 2015;103(2):344-346.
Research on mitochondrial replacement therapy (MRT) holds the promise of helping women who have, or are at risk of transmitting, mitochondrial disease, but has ... Read more »
Sabatello M, Phelan J, Hesdorffer D, Shostak S, Goldsmith J, Sorge S, Winawer M, Chung WK, Ottman R. Genetic causal attribution of epilepsy and its implications. Epilepsia 2015;56(10):1542-50. PMC4593736.
Research in other disorders suggests that genetic causal attribution of epilepsy might be associated with increased stigma. We investigated this hypothesis in a unique ... Read more »
Sabatello, M. Regulating Gamete Donation in the U.S.: Ethical, Legal and Social Implications. Laws 2015, 4, 352-376.
This article explores the practice of gamete donation in the U.S. having in mind the larger question of what do we as a society ... Read more »
Lappé M, Landecker H. Sociology in an age of genomic instability: copy number variation, somatic mosaicism, and the fallen genome, in Advances in Medical Sociology: Health, Genetics, and Society, Brea Perry (Ed). London, UK: Emerald, 2015.
This study analyzes the rise of genome instability in the life sciences and traces the problematic of instability as it relates to the sociology ... Read more »
Lappé M, Landecker H. How the genome got a lifespan, in Special Issue: Epigenetics and society: potential, expectations, and criticisms. New Genetics & Society 2015;32(2):152-176. PMC4512745.
In the space of little more than a decade, ideas of the human genome have shifted significantly, with the emergence of the notion that ... Read more »