Social Justice and Genome Editing: Voices of the Sickle Cell Disease Community
Vence L. Bonham, J.D.
Associate Investigator, Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health
Genome-editing technologies are reported to have the promise to cure, ease, and possibly prevent the burden of numerous genetic diseases. One of the first uses of genome editing could involve treatment of sickle cell disease. In this talk, Dr. Bonham will present findings from a recent study that investigates the knowledge, values and opinions of the U.S. sickle cell disease community about participation in genome-editing clinical trials and the future use of the technology in clinical care.
Seminar on Ethical, Legal and Social Implications of Genetics
Rm. 10-405A&B, Irving Institute for Clinical and Translational Research
10th Floor, Presbyterian Hospital (PH) Building, 622 W. 168th Street
Columbia University Medical Center, New York, NY