Some Nice Parting Gifts: Why Current Human Biological Research Governance Is both Unsustainable and Undesirable
Misha Angrist, Ph.D.
Associate Professor of the Practice, Social Science Research Institute
Senior Fellow, Science and Society, Duke University
Author, Here Is a Human Being: At the Dawn of Personal Genomics
Human biological data only become “big data” with the participation of many humans. But the misdirection, opacity and liability mitigation one finds in many biobanking protocols and consent forms not only alienate research participants, they ignore the realities of biological information that is increasingly cheap to generate and easy to disseminate and access.
Room 405A-B, Educational Center
Irving Institute for Clinical and Translational Research
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