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Educational Resources

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Other Centers for Excellence in ELSI Research


Educational Videos

Click the links below to see the 2017 Annual Conference videos:

Ethical Tangles in Neurodegenerative Disease Research: Targeting Participants at Genetic Risk

Part 1:

  •  Clinically Pre-manifest Studies in Neurodegenerative Disease: Overview of Study Design and Ethical Issues 
  •  The Colombian Alzheimer Prevention Initiative:  ELSI of Preclinical AD Research in a Developing Country 
  • Preclinical Research and Genetic Testing in Neurodegenerative Disorders: Psychosocial Impacts on Participants and Families 
  • ELSI of Treatment and Prevention Research on Spinal Muscular Atrophy 
  • Panel Discussion with Research Participants

Click here to see the conference videos from:
Genetic Testing in Neurologic Disorders 2014: Developments and Dilemmas
In the swiftly changing world of genetic testing, neurological disorders pose their own specific risks and dilemmas. This conference brings together the latest developments in genetic testing for neurologic disorders, viewed through the perspectives of physicians, researchers, people at risk, ethicists, and community-based groups.

Speakers include Paul Appelbaum, MD; Jacinda Sampson, MD, PhD; Wendy Chung, MD, PhD; Mary Edmondson, MD; Suzanne Carter, MS, JS; Alejandro Iglesias, MD; Chaim Jalas; and Arthur Caplan, PhD. (June 6 2014)

Click here to see the video:
Predicting Alzheimer Disease: The Social and Legal Complications
Hank Greely, JD (June 2014)

Click here to see the video:
Epigenetic Regulation in Schizophrenia and Related Disease
Schahram Akbarian, MD (March 2014)

Autism — what we know (and what we don’t know yet)
Wendy Chung: TED Talk on Autism (March 2014)

Wendy Chung: TED Talk March 2014

In this factual talk, geneticist Wendy Chung shares what we know about autism spectrum disorder — for example, that autism has multiple, perhaps interlocking, causes. Looking beyond the worry and concern that can surround a diagnosis, Chung and her team look at what we’ve learned through studies, treatments and careful listening.

Click here to see the video:
The Structure of Psychiatric Science and Decision Making in Gene-to-Phenotype Pathways
Kenneth Kendler, MD (February 2014)