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Return of Genomic Research Results: What About the Family?

February 8, 2016 - 12:00 pm

Center Seminar: Monday, February 8, 2016  12:00-1:00pm

Barbara A. Koenig, Ph.D.
Professor of Medical Anthropology & Bioethics
Dept. of Social & Behavioral Sciences,
Institute for Health & Aging, and Dept. of Anthropology, History, and Social Medicine
University of California, San Francisco

The implementation of precision medicine will generate vast quantities of genomic data, including information that would routinely be returned in the clinical context. Increasingly, research participants expect to receive such results and researchers question their obligations. This seminar will report on an inter-disciplinary NCI/NHGRI-funded project that asked the next question: Do the responsibilities of researchers extend beyond a participant’s death and include returning results with implications for family members?

Room 204, 10th Floor (PH 10-204)
Presbyterian Hospital Building
622 West 168th Street, New York, NY 10032