Abstract

How much control should individuals have over their genomic data? Although this question has been extensively discussed in debates about return of genomic incidental findings (IFs), Lazaro-Munoz and colleagues (2015) consider it in another putative context: population-based preventive genomic sequencing (PGS) programs that would target rare, highly penetrant, and medically actionable genetic (MAG) conditions. The authors advocate for a “menu” rather than a “panel” approach to the management of genomic information—allowing participants greater discretion regarding genes to be analyzed—because it better resonates with prevalent notions of patients’ autonomy, choice, and patient-centered decision making in medical contexts. This is an important discussion that will likely continue. However, the article does not address the implications of either approach for minors; indeed, it does not mention minors at all…