Short course co-sponsored by the Irving Institute for Clinical and Translational Research and the Center for Research on Ethical, Legal & Social Implications of Psychiatric, Neurologic & Behavioral Genetics, Columbia University
Genomics research and practice have complex ethical, legal, and social implications (ELSI) for diverse stakeholders – e.g., researchers, clinicians, persons living with or at risk for genetic disorders, family members, clergy, marginalized communities, the public. Widely differing perspectives both within and among stakeholder groups raise challenges for developing policy and practice recommendations. A variety of innovative methods seek to gather data on the views and values of members of diverse groups. This short course will provide an overview of approaches that can be used to encourage dialogue aimed at reaching broad understanding and elucidating areas of agreement and disagreement.
Course Faculty
- Alexis K. Walker, PhD, Assistant Professor of Medical Humanities and Ethics, Columbia University
- Daphne O. Martschenko, PhD, Postdoctoral Research Fellow, Stanford Center for Biomedical Ethics
- Vanessa Hiratsuka, PhD, MPH , Assistant Professor of Clinical and Translational ReWatch Videosearch, University of Alaska Anchorage
- Jessica G. Burke, PhD, MHS, Professor and Vice Chair for Education, Behavioral and Community Health Sciences, University of Pittsburgh Graduate School of Public Health
- Sara E. Baumann, PhD, MPH, Assistant Professor of Behavioral and Community Health Sciences, University of Pittsburgh Graduate School of Public Health
