Autism, Genetics & Identity: Exploring the Complexities of Autism Genetics Research
Watch on Video:
Welcome (Ruth Ottman, Josephine Johnston) and Keynote presentation: Multiple Autisms: Spectrums of Advocacy and Genomic Science • Speaker:Jennifer S Singh, Georgia Institute of Technology: https://vimeo.com/345453006
It Changed Everything and it Changed Nothing: What it Means to Receive a Genetic Cause of Your Autism • Speaker: Wendy Chung, Columbia University: https://vimeo.com/346407406
Neurodiversity, Autistic Identity and the Future of Autism Research • Speaker: Ari Ne’eman, Author, “The Right to Live in This World” (Simon & Schuster); President and Co-founder, Autism Self-Advocacy Network: https://vimeo.com/346625763
Looking Toward A Destination: Establishing Trust and Transparency in Autism Research • Speaker: Amy Gravino, ASCOT Consulting and Panel and Audience Q&A: Panel: Jennifer S Singh, Wendy Chung, Ari Ne’eman, Amy Gravino; Moderator: Paul Appelbaum: https://vimeo.com/346784974
A Public Conference convened by The Center for Research on Ethical, Legal & Social Implications of Psychiatric, Neurologic & Behavioral Genetics and The Hastings Center
This half-day conference is free and open to researchers, scholars, and interested members of the Columbia University community, local colleges and universities, journalists, and the general public.
Decades of research into the genetics of autism have revealed remarkable complexity. Not only is there no single gene for autism, numerous genetic changes can underlie the condition. With this surprisingly intricate genetic story has come an increasingly nuanced picture of how people with autism and their families understand the condition and make sense of autism genetics research.
Beginning with the work of Prof. Jennifer S. Singh, author of the book Multiple Autisms: Spectrums of Advocacy and Genomic Science (University of Minnesota Press, 2016), this conference will explore how autism emerged as a genetic disorder, what has been learned, and what is currently under study. Speakers from social science, genetics, and autism advocacy will explore how genetics research affects those who study autism and those who live with it.
Tuesday, June 11, 2019 • 12:30 – 5:30 PM • Faculty House, Columbia University, New York City
PROGRAM:
12:30-1:00 – Registration
1:00-1:15 – Welcome and introduction to the conference: Ruth Ottman, Josephine Johnston
1:15-2:15 – Keynote Talk: Multiple Autisms: Spectrums of Advocacy and Genomic Science • Speaker: Jennifer S Singh, Georgia Institute of Technology
2:15-3:00 – It Changed Everything and it Changed Nothing: What it Means to Receive a Genetic Cause of Your Autism • Speaker: Wendy Chung, Columbia University
3:00-3:30 – Break
3:30-4:15 – Neurodiversity, Autistic Identity and the Future of Autism Research • Speaker: Ari Ne’eman, Author, “The Right to Live in This World” (Simon & Schuster); President and Co-founder, Autism Self-Advocacy Network
4:15-5:00 – Looking Toward A Destination: Establishing Trust and Transparency in Autism Research • Speaker: Amy Gravino, ASCOT Consulting
5:00-5:30 – Panel and Audience Q&A: Panel: Jennifer S Singh, Wendy Chung, Ari Ne’eman, Amy Gravino; Moderator: Paul Appelbaum
