Seminar on Ethical, Legal and Social Implications of Genetics

Center for Research on Ethical/Legal/Social Implications of Psychiatric, Neurologic & Behavioral Genetics

Department of Psychiatry

Columbia University Medical Center

 

Monday, November 7, 2016 12:00-1:00pm

Room 19-201

Sergievsky Center
630 West 168 St. New York, NY 10032

 

Receiving Uncertain Genomic Test Result During Pregnancy:

Decision-Making and the Aftermath

 

Barbara A. Bernhardt, MS, CGC

Clinical Professor of Medicine

Genetic Counselor, Perelman School of Medicine, University of Pennsylvania

Through surveys and interviews, we have been exploring the experiences of women having prenatal chromosomal microarray testing and the prenatal genetic counselors who serve them.  The offer of genome-wide testing is viewed as an offer “too good to pass up”, but positive results may be viewed as “toxic knowledge”, complicating decision-making and impacting the parenting of children born with known copy number variants.  Study findings will be presented and discussed in light of current and future approaches to prenatal diagnosis.
Upcoming Dates and Speakers

December 19th – Mario Mendez, MD, PhD, Dept. of Neurology, UCLA

January 9th – Rayna Rapp, PhD, Dept. of Anthropology, NYU

February 6th – Consuelo Wilkins, MD, Dept. of Medicine, Vanderbilt Univ. & Meharry Medical College

March 13th –Susan Wolf, JD, University of Minnesota Law School

April 24th – Julia Wynn, MS, Dept. of Pediatrics, Columbia University

May 15th – Catherine Bliss, PhD, Dept. of Social & Behavioral Sciences, School of Nursing, UCSF

June 12th – R. Alta Charo, JD, Law School & Dept. of Medical History & Bioethics, Univ. of Wisconsin
For further information or to convey suggestions about future speakers, contact Paul S. Appelbaum, MD, Director, Center for Research on Ethical/Legal/Social Implications of Psychiatric, Neurologic & Behavioral Genetics, Department of Psychiatry, at 646-774-8630 or psa21@columbia.edu.