Social Justice and Genome Editing: Voices of the Sickle Cell Disease Community

Vence L. Bonham, J.D.

Associate Investigator, Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health

Genome-editing technologies are reported to have the promise to cure, ease, and possibly prevent the burden of numerous genetic diseases. One of the first uses of genome editing could involve treatment of sickle cell disease. In this talk, Dr. Bonham will present findings from a recent study that investigates the knowledge, values and opinions of the U.S. sickle cell disease community about participation in genome-editing clinical trials and the future use of the technology in clinical care.

Seminar on Ethical, Legal and Social Implications of Genetics

Rm. 10-405A&B, Irving Institute for Clinical and Translational Research

10th Floor, Presbyterian Hospital (PH) Building, 622 W. 168th Street 

Columbia University Medical Center, New York, NY